Category Archives: Cancers

Overview of Rare Disease Registries and U.S. Cancer Registries

Our post yesterday explained work in progress to create a national mesothelioma patient registry. That development should be viewed in the broader context of rare disease registries in general. On that topic, an open access article is Lacaze P,  et al, Rare disease registries: a call to action. Intern Med J. 2017 Sep;47(9):1075-1079. The article […]